Research.

Some diseases affect only a few thousand people in the whole country: too few for anyone to take them on out of self-interest. In Italy, for more than thirty years, someone has taken them on anyway — in the laboratories, with the names and the faces of those who are waiting.

Rare genetic diseases Fondazione Telethon

Like a comet.

Gregorio, Giorgia and Nina describe their rare genetic disease with the words they have: a comet, a double rainbow, something huge and fragile that nobody knows. The Fondazione Telethon film — since 1990 the foundation has raised funds for research into these conditions.

01:00 Fondazione Telethon in English, with subtitles

Video Fondazione Telethon

What you will see
  1. 01A child lying in the light
  2. 02The sky opening overhead
  3. 03A lone figure in an expanse of water
  4. 04The faces, one after another, each with a name
  5. 05The closing question: “Will you take care of us?”